A question about the Baclofen Pump???

Question

We recently ecieved a letter from a neurologist about my brother in law that has cerebral Palsy, and it stated that he is a canditate for the bacolofen Pump. He has been taking the Baclofen oraly. He is also in a group home may hours away. They cannot do this without our permission, this is an implant. I will do research and also call the doctor. I will not aloww my brother in law to be some ginneau pig for a pharmacy. I don't know how this would differ from it being taken orally compared to an implant pump besides it getting into the blood stream faster. Of course the Home nurse mothers give him the medicine. So I want to know if anyone out there had any expierience with this medicine or pump. My brother in law is 46 years old. He does have some paralysis. he does good though, even worked in some estalbishment and has a work shop too. Please anyone with this expierience would be appreciated. Please serious answers only. It could happen to your relative.

Answer 1

Hi There

The doctors are suggesting to implant a baclofen pump into my son,

I have been doing some research on it. It is a little scary for me as my son can't talk to say if it is ok. Far as I know they do general anaesthetic, implant a little reservoir in the front hip area and a little tube goes under the skin around to the back, right at the area of release, it is not a needle and doesn't go into the spine just in the area outside, I've been told.



the pump releases the baclofen a little at a time and gets refilled at the hospital outpatient and last around 4-6 weeks, I was afraid of it leaking cause my son couldn't tell me if he was faint or anything and they said it wouldn't leak just maybe get blocked

or kinked. But they want me to pay, It was around $18000. Canadian

The difference from taken orally it passes the side effects to the brain

Answer 2

Before taking this medicine



You should not use baclofen if you are allergic to it.

To make sure you can safely take baclofen, tell your doctor if you have any of these other conditions:

- kidney disease;

- epilepsy or other seizure disorder; or

- a history of stroke or blood clots.

Using baclofen may increase your risk of developing an ovarian cyst. Talk with your doctor about your specific risk.

FDA pregnancy category C. It is not known whether baclofen will harm an unborn baby. Tell your doctor if you are pregnant or plan to become pregnant while using this medication. It is not known whether baclofen passes into breast milk or if it could harm a nursing baby. You should not breast-feed while you are using baclofen. Do not give this medication to a child younger than 12 years old. Older adults may be more sensitive to the effects of this medicine.

See also: Pregnancy and breastfeeding warnings (in more detail)





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Answer 3

I can't give you an answer from any personal experience of receiving ITB (intra-thecal baclofen). But, I did attend a seminar on it presented by Medtronic. They have more consumer information at there website, under, "Severe Spasticity."